From the beginning we have been very open about Fs illness – with the family and with her.
Her condition is incurable and she will always have it. I have said that myself so many times that this incident really caught me by surprise.
J took the girls with him when he went to the hairdressers, While there, F needed her medicine (she gets it every hour) and the hairdresser was asking about it. And the really typical question came
“Can they fix it?”
“No. I’ll have this forever”.
J recounted this when he got home. And I felt a little stab in my heart when he repeated what F had said. It was like someone took a knife and just nicked me in the heart.
Yet it just seems so painful to me when I think of my little 7 year old girl saying that she will have this illness forever.
Maybe it just makes it more real.
Maybe it’s because it puts the truth into the context of her life.
Whatever it is, I guess it just goes to show that acceptance of this illness doesn’t mean that it’s ok that she has it.