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Chronic illness: the parts we don't talk about


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Why I hate Frozen

If you are a mum like me, you do this:

run and hide in the bathroom when the kids are driving you nuts.

Well, my sweet, smart and cheeky S just destroyed for me.

Today, while I was trying to find my sanity she came up to the bathroom door and sang “do you want to build a snowman?”

then she sang through the lock and then under the door.

how could I not open the door?

so thanks Frozen. I have lost my refuge.

It was incredibly cute though. I’m still smiling.


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I don’t know what this means, but I bet you’ve thought it too

On monday night we were all sitting together at the dinner table chatting.

The girls are fascinated by age and love to play this game “when I’m x, how old will you be?”

J went big on this. “When A is 80, F, you will be 74 and S will be 70”. The kids loved it!

I watched their happy faces and tried to imagine them sitting together having fun, at those ripe old ages.

And I could. Except for F. This little thought fluttered through my head so fast that it was almost imperceptible.

“Will F reach 74?”

I didn’t have this thought about the other two.

Now, you never know what the future will bring and I don’t know what it means, that I can picture S and A in their 70s and 80s but draw a blank when it comes to F.

I don’t even want to try and interpret it.

But I just bet that all of you out there, with kids with a chronic illness, will have that same fluttering thought if you play this game.

You might even have that thought about yourself.

Is life just so much closer to the edge when you are sick?