amber rahim

Chronic illness: the parts we don't talk about

Tag Archives: stress of parenting


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Oh Mic-Key you’re so fine

you’re so fine, you blow my mind, hey Mickey!

If you are old like me, you remember that song (just click on the link above if you want a trip down memory lane).

Today I wished that the healthy one, S, had a Mic-Key button. This is an enteral feeding c3729405c2e58cb4a2af914378c94e0ddevice that is basically a piece of tubing that you put into the stomach so that you can put food/medicine directly into the stomach.

F gets all her medicine through hers.

Yesterday S had minor surgery to repair her thumb – the top came off, nail and all, in an accident at school. She has lost the nail and hopefully it will grow back. In about 6 months. I wrote about it here

Her bravery carried her through the poking and prodding of the doctors, the gas to sedate, the local anaesthetic. It lasted until she came home and we tried to take her coat off.

All the fear, terror, and pain came together to overwhelm her.

THEN we tried to give her antibiotics. She is in very deal danger of developing an infection in the blood but of course she doesn’t understand that. She’s little.

And it tastes yucky. She’s scared of it. Transference perhaps? But actually who cares. I need to get the medicine in her.

And in her own words:

Can I have a Mickey like F has?

That would make both of our lives so much easier right now. How do you guys get your kids to take their medicine?

You’d think we’d be masters at this: we do give F medicine every hour that she is a awake (and through the night too). But we have never had to make her drink it. She has a Mickey button so we always use that.

Now the healthy one needs to have medicine and she’s fighting. And it’s tough.

So today I wished she had a Mickey too.

 

p.s. chocolate is not a great motivator for this little sugar addict – I mean seriously chocolate, how could you let me down like this? Lollipop, you’re up next.


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Dear children, your happiness is not my goal

I sometimes struggle with being a parent, it seems so hard and kids just seem so determined to do their own thing. I sometimes wonder “what is it that I am supposed to be doing here? How can I know if what I am doing is right?”

So I did what I often do when faced with life’s big questions, I perused Facebook. Specifically, my saved items in FB that I have saved because they look really interesting and worth my time (but will actually take some time to look at so I  decide to do it later and continue with the chitchat instead).

I watched this Ted talk by Jennifer Senior on happiness for children. It’s 18 mins long and if you cherish your sanity as a parent, I highly recommend that you watch it. It is the inspiration for my post today for 2 reasons

  1. she has put into words thoughts that I have been struggling to define (and has research to back it up)
  2. I want the best for my children

So here is my attempt to explain why my isn’t my goal to make my children happy.

It helps my sanity, and certainly my anxiety, that I am naturally quite lazy. Hmm, hang on, thats not quite right; I work very hard when I believe in something. But when faced with something I don’t believe in, my response is “what’s the point?”

When it comes to parenting, these are some things I don’t believe in:

  • I don’t believe in parenting as a verb

Until the 1970’s, parent was only a noun (thanks for the info Jennifer): something we could be, not what we could do. This small grammatical change seems to coincide with an increase in the amount of work we apparently need to do as parents. So many objectives, so many goals, things we “absolutely must do” and things that we “must never do”. And that can be the same thing, the answer just depends on who you ask! Why should there be so much work? What is the point of all that running around, of the stress?

  • I don’t believe our goal, our objective, should be that our children are happy

I truly want my children to be happy but I also believe that we are responsible for our own happiness. So how can my children’s happiness be my goal? How can I make sure my children are happy? Take away their autonomy? Take away their independence? Replace it with instructions of do this, do that?

How would I even know what to do for my children when I get lost and sometimes can’t figure out how to make myself happy?

So what are my goals?

When Jennifer says “what if we aim for productive kids, moral kids, and hope happiness will come from the good they do and the love they feel from us?” my heart sings and my soul says “Yes!”

What if my goal as a parent was to teach my children decency, work ethic, love?

Well, to start with, I know what to do to teach these. I can demonstrate decency, a good work ethic and love. I can explain what it is (to me at least) and encourage them to develop their own values.

I can praise them when they practice it with a “you worked really hard on that”. How would I praise happiness? With a “well done, you are happy”? I think they would just look at me like I was a loon.

Decency. Work ethic. Love. I can work with this.

As I write this I realise this is exactly what my parents did for me. They taught me decency: how to treat others; how to behave in society so that my contribution is positive; how to stop myself being rude to the obnoxious colleague and still stand my ground.

They taught me to work hard, work thoughtfully and to be proud of myself.

They taught me how to love unconditionally by loving me and each other that way.

And you know what? I’m pretty happy. I’m fairly confident. So maybe it works after all.

Decency. Work ethic. Love

 

p.s. I am not saying that I have the answer for everyone. This just feels right for me.

This is just my response to that overwhelming feeling from society at large that I should be making sure my kids are happy and I just don’t buy it. Check out what Jennifer has to say. Think about it. That’s all.